Join us for a memorial walk in honor of Elliana Rose Campbell, hosted by Elliana’s Army in alliance with EB Research Partnership.
Elliana was born on May 23, 2024, and was diagnosed with Junctional Epidermolysis Bullosa (EB), otherwise known as the “Butterfly Skin Disease”, shortly after her birth. This cruel disease is so named because it causes the victim’s skin to be incredibly fragile, blistering at the slightest touch. This causes daily, near unmanageable pain, impacting both the inside and outside of the body.
There is no cure for Epidermolysis Bullosa.
Ellie battled courageously, and she unfortunately passed away on April 7th of this year. Her parents and her big sister, Ember, have shown her a lifetime of love, patience, and adventure in just 10 short months. Her family has shared their ongoing journey on social media, and nearly 800,000 people from around the world are following their story, ready to support this family as well as the EB community.
Elliana’s Army is working to raise funds and awareness for this disease in the hopes of ultimately finding a cure.
On Saturday, May 24, Elliana’s Army is hosting a charity walk in honor of Ellie, who would have turned one today.