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METHOD:PUBLISH
VERSION:2.0
CALSCALE:GREGORIAN
PRODID:-//NONSGML Sandhills Development\, LLC//NONSGML Sugar Calendar Fe
 eds v3.6.6//EN
X-WR-CALNAME:Elliana's Hope for Healing Memorial Walk
X-WR-CALDESC:Bangor Downtown
X-WR-TIMEZONE:America/New_York
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TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
DTSTART:20250309T070000
TZNAME:EDT
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TZID:America/New_York
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DTSTART:20250309T070000
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BEGIN:VEVENT
SUMMARY:Elliana's Hope for Healing Memorial Walk
DESCRIPTION:Join us for a memorial walk in honor of Elliana Rose Campbel
 l\, hosted by Elliana's Army in alliance with EB Research Partnership.\n
 \n\n\nElliana was born on May 23\, 2024\, and was diagnosed with Junctio
 nal Epidermolysis Bullosa (EB)\, otherwise known as the "Butterfly Skin 
 Disease"\, shortly after her birth.&nbsp\; This cruel disease is so name
 d because it causes the victim's skin to be incredibly fragile\, blister
 ing at the slightest touch.&nbsp\; This causes daily\, near unmanageable
  pain\, impacting both the inside and outside of the body.&nbsp\;&nbsp\;
 \n\n\n\nThere is no cure for Epidermolysis Bullosa.&nbsp\;\n\n\n\nEllie 
 battled courageously\, and she unfortunately passed away on April 7th of
  this year.&nbsp\; Her parents and her big sister\, Ember\, have shown h
 er a lifetime of love\, patience\, and adventure in just 10 short months
 .&nbsp\; Her family has shared their ongoing journey on social media\, a
 nd nearly 800\,000 people from around the world are following their stor
 y\, ready to support this family as well as the EB community.&nbsp\;\n\n
 \n\nElliana’s Army is&nbsp\;working to raise funds and awareness for t
 his disease in the hopes of ultimately finding a cure.&nbsp\;\n\n\n\nOn 
 Saturday\, May 24\,  Elliana’s Army is hosting a charity walk in hono
 r of Ellie\, who would have turned one today. 
URL;VALUE=URI:https://downtownbangor.com/events/ellianas-hope-for-healin
 g-memorial-walk/
UID:urn:uuid:3b370d9a-5704-420d-bdc5-91c51109411f
STATUS:CONFIRMED
ORGANIZER:
DTSTAMP:20260417T072831Z
DTSTART;TZID=America/New_York:20250524T100000
DTEND;TZID=America/New_York:20250524T110000
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